Alzheimer’s: The facts and Figures
alzheimer’s association report sheds new light on scope of disease
According to the 2013 Alzheimer’s Disease Facts and Figures report, one in three seniors dies with Alzheimer’s or another dementia in the United States. The new report shows that while deaths from other major diseases, such as heart disease, HIV/AIDS and stroke, continue to experience significant declines, Alzheimer’s deaths continue to rise – increasing 68 percent from 2000-2010.
“Unfortunately, today there are no Alzheimer’s survivors. If you have Alzheimer’s disease, you either die from it or die with it,” said Harry Johns, president and CEO of the Alzheimer’s Association. “Now we know that one in three seniors dies with Alzheimer’s disease or another dementia. Urgent, meaningful action is necessary, particularly as more and more people age into greater risk for developing a disease that today has no cure and no way to slow or stop its progression.”
Alzheimer’s disease is the sixth-leading cause of death in the United States and is the only leading cause of death without a way to prevent, cure or even slow its progression. Based on 2010 data, Alzheimer’s was reported as the underlying cause of death for 83,494 individuals – individuals who died from Alzheimer’s. Alzheimer’s Association 2013 Facts and Figures reveals that in 2013 an estimated 450,000 people in the United States will die with Alzheimer’s. The true number of deaths caused by Alzheimer’s is likely to be somewhere between the officially reported number of those dying from and those dying with Alzheimer’s.
Human and Financial Toll of Alzheimer’s
More than 5 million Americans are living with Alzheimer’s disease. Without the development of medical breakthroughs that prevent, slow or stop the disease, by 2050, the number of people with Alzheimer’s disease could reach 13.8 million. Previous estimates suggest that number could be high as 16 million.
Alzheimer’s and dementia place an enormous burden on individuals and families. In 2012, there were more than 15 million caregivers who provided more than 17 billion hours of unpaid care valued at $216 billion. Individuals with dementia often require increasing levels of supervision and personal care as the disease progresses. As symptoms exacerbate as the disease progresses, the high levels of care required by family members and friends can often result in increased emotional stress and health challenges for caregivers. Due to the physical and emotional toll of caregiving, Alzheimer’s and dementia caregivers had $9.1 billion in additional health care costs of their own in 2012.
The burden on the nation’s health care system and government programs is also enormous. According to Alzheimer’s Association 2013 Facts and Figures, the total payments for health and long-term care services for people with Alzheimer’s and other dementias will total $203 billion in 2013, the lion’s share of which will be borne by Medicare and Medicaid with combined costs of $142 billion. Despite these staggering figures today, by 2050 total costs will increase 500 percent to $1.2 trillion.
“Alzheimer’s disease steals everything — steadily, relentlessly, inevitably. With baby boomers reaching the age of elevated risk, we do not have time to do what we have always done,” said Robert Egge, vice president of public policy for the Alzheimer’s Association. “The National Institutes of Health needs to reset its priorities and focus its resources on the crisis at our doorstep, and Congress must fully fund implementation of the National Alzheimer’s Plan to solve the crisis.”
Special Focus on the Long-Distance Caregiving Experience
The Alzheimer’s Association 2013 Facts and Figures also explores the challenges faced by long-distance caregivers for people living with Alzheimer’s. The report finds that nearly 15 percent of caregivers for people with Alzheimer’s or another dementia are “long-distance caregivers” — caring for people with Alzheimer’s disease who live at least 1 hour away. These long-distance caregivers had annual out-of-pocket expenses nearly twice as high as local caregivers – $9,654 compared to $5,055.
The Alzheimer’s Association is the world’s leading voluntary health organization in Alzheimer’s care, support and research and offers a variety of educational and support resources, including its 24/7, toll-free Helpline (1.800.272.3900), care consultation and online resources. The full text of the report can be viewed at www.alz.org/alzheimers_disease_facts_and_figures.asp.
Published: April 2014